To complicate things, Laurie also has gastroparesis, a condition in which things take a long time to move through your stomach system, which influence her ability to metabolize medication. “So many people struggle with it, and a large number of people take it for a while and just say:” I can’t handle this anymore. ” I’m not sure if it really did something for me ”
Living with lung fibrosis as a caretaker
What would turn out to be just as difficult after her illness progressed was the urgent need to find a group care home for her adult daughter, for which the couple had always taken care of in their house. She has cerebral palsy and is legally blind, requires a food tube and 24-hour care.
“As you get older, it is more difficult. And because I got sicker, I couldn’t do it,” says Laurie. Then she had to be in Toronto for the lung transplantation and recovery. Due to crisising, she was able to place her daughter in a group house where she now settled. “That was very difficult for her father and I to do. I think that was more difficult than confronted with a transplant, to be completely honest.”
Her son also has the genetic marker for lung fibrosis, which means he could develop it. Her niece is in the same situation. “Of course I was really sad and emotional when I was diagnosed. But boy, if you know that some of your genetics will be passed on to your son and it can cause him to be in the same boat, that is difficult.”
#Living #lung #fibrosis #active #continue #reduce