A shocking video has documented the devastating rapid deterioration of patients with motor neuron disease – the omdocuming of the loss of the basic functions of one patient in just one year.
The Instagram clip, which has been viewed more than 6.3 million times, reveals the heartbreaking difference in the health of 57-year-old Darin Nakakihara, from southern California, which can be seen to talk.
“My voice has almost disappeared,” he said. ‘I usually sit in a wheelchair. But I still function ‘.
According to the video that was filmed earlier this month, the father of three now relies on a wheelchair to make ends meet and needs help in almost every aspect of his life.
A clip on top of the most recent video show that he easily walked and talked this time last year, just like someone without the disease.
In May last year, even though he was very easy to get tired, the teacher was still able to walk, talk and to function independently in daily life, he told the followers.
The progressive disease – which influences the signals between the brain and the rest of the body – first met the Lord Nakakihara in 2022.
He went from an active person with ‘boundless energy’ to a patient of several inexplicable health problems, who were subsequently found the result of as – the most common type of motor neuron disease, which gradually stops patients moving, talking and even eating.
Darin is determined to document his voice until he can no longer, which increases consciousness for the debilitating disease on social media
Darin has three daughters, Madie, Brookie and Kendall with his wife Denise
As a claimed the life of Sandra Bullock’s partner Bryan Randall in 2023 and the acclaimed scientist Stephen Hawking suffered famous problems.
The first signs of the disease were subtle. In the summer of 2022, Mr Nakakihara suffered a fall at home in his garage. He fell again while taking school photos.
By January 2023 he quickly lost strength on the left side of his body.
He developed the ‘fallen foot’ syndrome and suffering at night of leg cramps and his body constantly pulled.
Doctors initially diagnose the diagnosis of the spine stenosis – a common condition in which the channel contains the spinal cord, is narrowed or limited, causing pain in the lower back and legs, neck, arms and hands.
He underwent neck surgery in May 2023 to tackle his symptoms.
During his follow-up visits, however, the surgeon of Mr Nakakihara was increasingly concerned about his lack of physical improvement.
He was then referred to a neurologist for further tests, who diagnosed as a diagnostic in November 2023.
If can lead to paralysis and ultimately death. The acclaimed scientist Stephen Hawking has been familiar with it
Dedicated to the distribution of consciousness for the devastating disease, he has encouraged his followers who have been newly diagnosed to register their voice, as long as they can.
“Take your voice now before it’s too late,” he said in a video posted on Instagram.
“I mean it. If you can take a voice at night, not a warning, and once it’s gone, it’s gone.
‘But if you record it now, you can keep a part of yourself, your real voice, you show you smile. Believe me, future, you will thank you. ‘
Since then he has promised to document his voice every May 19 until it is gone.
In a separate video He updated his followers on his current condition, said:
‘I had a clinic appointment last week and it was a difficult one. Probably the realest so far. And not in a good way ‘.
Despite the fact that he makes progress earlier with his breathing difficulties, Mr. Nakakihara now needs a bipap machine to help him breathe.
As a result, the life of Sandra Bullock’s partner Bryan Randall (depicted with Sandra in 2018) also claimed in 2023
Leeds Rhinos star Rob Burrow (photo) died last year at the age of only 41 after a battle of four and a half years with MND
This rare and incurable condition influences the brain and nerves and rains patients with their ability to move, eat and eventually breathe. Shown, Rob Burrow in 2013
“Everything got worse,” he explained in the video.
‘We ordered a cough assistance and a Hoyer lift because that writing is definitely on the wall.
‘I try to stay strong, I really am.
“But it hit differently. The reality of how quickly things change is really starting to sink.
“But I am still there, I am still me and I am still looking for joy, even when those moments are filled with tears.”
His friends have one Gofundme Page to support his family with the Finanical burden of an incurable disease, hoping that the funds will enable him to spend as much time as possible with his three daughters and wife.
If is a rare condition that gradually harms parts of the nervous system.
About 5,000 adults in the UK have ALS and there is one in 300 risk to develop the condition in the course of a person’s life.
The life expectancy for about half of those with the condition is between only two and five years from the start of the symptoms. But these can deteriorate quickly.
The most common cause of death for people with ALS is inhaling failure.
Some people may live up to 10 years, and, in rarer circumstances, even longer.
Together with muscles, cramps and muscle weakness belong to the early signs of the condition, along with unclear speech and weight loss.
There is no remedy, but doctors can offer treatments to reduce the impact it has on a person’s life.
The exact cause is largely unknown, but the current research indicates a complex interplay of genetic, environmental and possible lifestyle factors – and it often becomes fit and healthy people.
Last year Leeds Rhinos star Rob Burrow died, 41, after a battle of four and a half years with the condition.
Locked syndrome (LIS) is a rare neurological condition that can also occur in some progressive cases of ALS.
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