Understand the research of Lupus

Research promoted by patients: Ray

Another source of Lupus Foundation of America is a computer platform called Ray: research accelerated by you[Investigaciones aceleradas por ti]. Ray ensures that people with Lupus and their carers share their experiences with Lupus and actively participate in the study of the condition. The information collected by Ray is useful for researchers to develop new treatments that identify methods to improve the lives of people who live with Lupus.

Registering for Ray only requires answering a virtual examination. Your information is shared anonymously with researchers, which means that it remains completely confidential.

Observation studies: Lupus Landmark Study

In an observational study, researchers evaluate a group of people without a treatment or other intervention to collect information.

Lupus Research Alliance is currently conducting an observational study that will be useful for the treatment of Lupus. Has the name of Lupus Landmark Study [Estudio de referencia de lupus] (LLS) And will follow and collect information from 3,500 people who live with lupus.

Lupus Research Alliance is looking for people to participate in the LLS. You are eligible if you have the most common type of lupus, the Systemic Lupus Erythematosus (Les) Y:

• You have 18 years or more at the time of registration
• You can give permission
• You are not pregnant
• You can attend the required visits of the study

Patient files: Research funded by CDC

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A patient file is a collection of information from people with a specific medical condition or diagnosis. The Centers for Disease Prevention and Control (CDC) currently finance five regional lupus records in the United States.

These records are:

• The Emory University (Georgia)
• The Mayo Clinic (Minnesota)
• New York University
• The University of California, San Francisco
• Utah University

The purpose of this data is to increase awareness of who she gives lupus and how this disease influences them. These records are also useful to understand the ways in which health differences have influenced people who have influenced lupus.

Health differences are health differences that are associated with more important problems of inequality of resources and social, economic and environmental people. These include differences in clinical results of life expectations, health problems and death rates and to prevent diseases of a population.

Health differences are associated with factors such as race, gender, geography, income and access to medical care. For example: Lupus influences people of all breed and ethnicity, but that condition is three times more often For black women than for white women, and black women are more likely to have serious conditions.

The experts They don’t know for sure Why lupus affects black people much more, but they think that genetics, hormones and environmental factors play a role in this.

Find hope with research

Lupus is a complex condition with a wide range of symptoms that influence many parts of the body. Although this hinders its treatment, it also creates many research options.

Whether you participate in a clinic or a computer, you can contribute to the development of new treatments for Lupus. In addition to assessing the aforementioned means, talk to your medical care provider about clinical tests or other types of research that can be useful to you and for all people who live with Lupus.